This page provides links to websites about biobanking and related activities. Each link also includes a short description of the website to give you an overview of the content, and help you decide if you’d like to read further.
Office for Health and Medical Research Biobank Registry The Office for Health and Medical Research has developed a statewide registry that includes biobank contact details, type, collection focus, sample types and numbers, and data types and numbers, for all biobanks.
Cancer Institute New South Wales (CINSW) CINSW is a statewide cancer control agency. This government agency offers a wide range of information on cancer statistics, funding opportunities, cancer prevention/detection, and support for both health professionals and patients. CINSW also established the Biobanking Stakeholder Network (BSN), with membership comprising representatives from each of the seven Translational Cancer Research Centres, as well as other relevant biobanking stakeholders.
The Biobank Resource Centre This comprehensive website by the Canadian Tumour Repository Network (CTRNet) includes information on biobank certification, education, services and tools, a biobank registry, informational videos and publications. CTRNet also publishes a comprehensive list of downloadable SOPs that can be modified to suit individual biobank needs.
Australasian Biospecimen Network Association (ABNA) The ABNA promotes biobanking in Australasia through support, enhancing biospecimen access and networking of biobanks and stakeholders. The association also hosts an annual conference, which brings together ABNA members, other biobankers, experts in related fields and industry representatives.
International Society for Biological and Environmental Repositories (ISBER) ISBER is a large, international biobanking society that addresses the technical, legal, ethical, and managerial issues associated with biobanking. Their website offers many current biobanking resources, as well as details of their annual conference (usually held in the USA).
Office for Biorepositories and Biospecimen Research Branch (BBRB) This National Cancer Institute website provides in-depth evidence-based information on biobanking. It features links to a biospecimen research database, NCI Best Practices, biospecimen evidence-based practices, and SOPs.
Integrated BioBank of Luxembourg (IBBL) This website, for the not-for-profit biobanking organisation IBBL, provides an excellent example of a country-wide biobanking initiative that contains information and resources for all biobanking stakeholders. It also contains general biobanking information that is applicable to all biobanks seeking to improve the quality of their operations.
Public Population Project in Genomics and Society (P3G) The P3G is a not-for-profit consortium that aims to provide (amongst other resources) biobanking information that is applicable to an international audience.
European, Middle Eastern and African Society for Biobanking (ESBB) This ISBER affiliate has a regional focus, however retains similar aims to those of ISBER. The website contains educational videos, links to other biobanking websites, and promotes an annual biobanking conference (usually held in Europe).
Enhancing the QUAlity and Transparency Of health Research (The EQUATOR Network) The EQUATOR Network highlights the importance of standardisation of aspects of medical research through promotion of transparent and accurate reporting of research studies. The BRISQ guidelines are listed on this website as part of an initative to standardise biospecimen reporting in peer-reviewed journals.
National Association of Testing Authorities (NATA) This Australian association provides assessment, accreditation and training services to laboratories and technical facilities, including biobanking. A biobank must fulfil particular criteria to be assessed by NATA; further information can be found on their website.
Biobanking This Australian website, developed as part of a NHMRC-funded project, explores the ethical and legal aspects of biobanking, including relevant legislation, case law, and local and international resources.