Final report on “Data Management Systems and Practices of the Cancer Institute NSW Biobanking Stakeholder Network” published

We are pleased to announce the submission of A/Prof Kevin Spring’s 2013/14 Biobanking Stakeholder Network project, “Data Management Systems and Practices of the Cancer Institute NSW Biobanking Stakeholder Network” report. The Cancer Institute NSW funded three survey-based projects in 2013/14, which together were tasked with gaining an in-depth understanding of the practices and systems across BSN biobanks, via a comprehensive combined survey.

This report includes comprehensive data management information on all 23 operational cancer biobanks in NSW, and specifically aimed to:

  • Determine what biobanking data management systems are in use across the BSN, and how these are used for data collection, storage and management.
  • Identify the current levels of harmonisation in biobanking data management systems and data collection/management practices across the BSN.
  • Identify minimal IT standards and identify gaps in the application of these and approaches that could address this.
  • Compare and contrast the data fields held by BSN biobanks with the Cancer Australia biospecimen minimal data set, and identify IT approaches that could address any imbalance.
  • Determine the interoperability of the current systems in use and if there is scope for any integration of data sets for the common good.
  • Map the financial and workforce support of BSN biobank data management systems and determine the costs and benefits of implementing more centralised IT/data management approaches and the steps required to implement these.

If you would like a copy of this report, please click here.

Suggested citation:

Christiansen, J.H., Farrell, J.P. and Spring, K.J. ‘Data Management Systems and Practices of the Cancer Institute NSW Biobanking Stakeholder Network’. Sydney. CONCERT Translational Cancer Research Centre. December 2014.

Biobanking Stakeholder Network Symposium

Organisation of this Biobanking Stakeholder Network symposium formed part of the 2014/15 BSN project “Improving Biospecimen Quality within BSN Biobanks”. The symposium was jointly hosted by the Cancer Institute NSW and The University of Sydney for BSN member biobank staff and other interested stakeholders.

The symposium was held on Friday 22nd May, 2015, at the Darlington Centre Conference Room, 174 City Rd, Darlington, The University of Sydney.

It was divided into two sections, with a morning session (Part 1) featuring presentations on ‘Positioning biobanking to meet the 21st century’ and a late morning/afternoon session (Part 2) on biospecimen quality, from the perspective of biobanks and researchers. The day commenced with presentations from the Office for Health and Medical Research, and NSW Health Pathology, followed by Professor Sanchia Aranda, Acting CEO of Cancer Institute NSW. The remainder of the day featured presentations on the three main areas of BSN research, namely patient consent, data linkage, and operations standardisation, and presentations on biospecimen quality from both a biobank and researcher perspective.

The conference program, found here, showcased a day of biobanking presentations, discussions and networking. Presentations from the day have been posted in the resources section of the website.

If you would like more information on this BSN biobanking conference, please email Amanda Rush using details on the contacts page.

Final report on “Definition of Minimum Standards for CINSW BSN Biobanks” published

We are pleased to announce the completion of A/Prof Jennifer Byrne’s 2013/14 Biobanking Stakeholder Network project, “Definition of Minimum Standards for CINSW BSN Biobanks”. Cancer Institute NSW funded three survey-based projects in 2013/14, which together were tasked with gaining an in-depth understanding of the practices and systems across BSN biobanks, via a comprehensive combined survey. Our survey yielded a large volume of valuable data, and the final project report can be accessed via the icon below.

The report includes collated and analysed data from all 23 operational cancer biobanks in NSW, as well as stated deliverables from the project proposal:

  • Minimal biobank features to assist in the evaluation of feasible networking models for the BSN
  • Guidelines and recommendations to assist new biobanks in their establishment
  • A review and development of recommendations for biobanking best practices to be used in the BSN setting
  • A gap analysis of the current landscape of cancer biobanking in NSW
  • Proposed models of networking suitable for cancer biobanks in NSW

It is our hope that the report will provide useful information for all biobanking stakeholders, guidance for biobanks in their infancy, and solutions to harmonise the NSW cancer biobanking sector.

If you are interested in a copy of this report, please click here.

Suggested citation:

Rush, A. and Byrne, J.A. ‘Definition of Minimum Standards for CINSW BSN Biobanks: Comprehensive survey results and recommendations for standardisation and networking of cancer biobanks in NSW’. Sydney. Kids Cancer Alliance Translational Cancer Research Centre. September 2014.

BSN website goes live!

This website forms part of a project, funded by the Biobanking Stakeholder Network (BSN) for 2014/15 (see the About page for further information on the project). The website is intended to provide details of cancer biobanks in NSW, as well as upcoming biobanking events and resources.

The website will be regularly updated, so please check back for regular project updates and new resources.