We are pleased to announce the submission of A/Prof Kevin Spring’s 2013/14 Biobanking Stakeholder Network project, “Data Management Systems and Practices of the Cancer Institute NSW Biobanking Stakeholder Network” report. The Cancer Institute NSW funded three survey-based projects in 2013/14, which together were tasked with gaining an in-depth understanding of the practices and systems across BSN biobanks, via a comprehensive combined survey.
This report includes comprehensive data management information on all 23 operational cancer biobanks in NSW, and specifically aimed to:
- Determine what biobanking data management systems are in use across the BSN, and how these are used for data collection, storage and management.
- Identify the current levels of harmonisation in biobanking data management systems and data collection/management practices across the BSN.
- Identify minimal IT standards and identify gaps in the application of these and approaches that could address this.
- Compare and contrast the data fields held by BSN biobanks with the Cancer Australia biospecimen minimal data set, and identify IT approaches that could address any imbalance.
- Determine the interoperability of the current systems in use and if there is scope for any integration of data sets for the common good.
- Map the financial and workforce support of BSN biobank data management systems and determine the costs and benefits of implementing more centralised IT/data management approaches and the steps required to implement these.
If you would like a copy of this report, please click here.
Christiansen, J.H., Farrell, J.P. and Spring, K.J. ‘Data Management Systems and Practices of the Cancer Institute NSW Biobanking Stakeholder Network’. Sydney. CONCERT Translational Cancer Research Centre. December 2014.