Final report on “Data Management Systems and Practices of the Cancer Institute NSW Biobanking Stakeholder Network” published

We are pleased to announce the submission of A/Prof Kevin Spring’s 2013/14 Biobanking Stakeholder Network project, “Data Management Systems and Practices of the Cancer Institute NSW Biobanking Stakeholder Network” report. The Cancer Institute NSW funded three survey-based projects in 2013/14, which together were tasked with gaining an in-depth understanding of the practices and systems across BSN biobanks, via a comprehensive combined survey.

This report includes comprehensive data management information on all 23 operational cancer biobanks in NSW, and specifically aimed to:

  • Determine what biobanking data management systems are in use across the BSN, and how these are used for data collection, storage and management.
  • Identify the current levels of harmonisation in biobanking data management systems and data collection/management practices across the BSN.
  • Identify minimal IT standards and identify gaps in the application of these and approaches that could address this.
  • Compare and contrast the data fields held by BSN biobanks with the Cancer Australia biospecimen minimal data set, and identify IT approaches that could address any imbalance.
  • Determine the interoperability of the current systems in use and if there is scope for any integration of data sets for the common good.
  • Map the financial and workforce support of BSN biobank data management systems and determine the costs and benefits of implementing more centralised IT/data management approaches and the steps required to implement these.

If you would like a copy of this report, please click here.

Suggested citation:

Christiansen, J.H., Farrell, J.P. and Spring, K.J. ‘Data Management Systems and Practices of the Cancer Institute NSW Biobanking Stakeholder Network’. Sydney. CONCERT Translational Cancer Research Centre. December 2014.

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